Tuesday, December 1, 2015
Sunday, November 15, 2015
what i did on my november vacation
Sunday, November 8, 2015
taking stock
roadtrip connection
Thursday, November 5, 2015
outside the zone
Monday, November 2, 2015
mind body spirit
I just spent an inspiring (and I don't use that word lightly) week end at Body, Mind, Spirit, 2010: National Conference for Young Women Living with Breast Cancer.
My best parts:
A Friday afternoon workshop: "Take charge of Your Treatment for Women with Metastatic Breast Cancer" with Dr. Maureen Trudeau. Engaging, accessible, interesting, informative and hopeful.
A Saturday afternoon workshop: "Intimacy after Cancer: Rekindling the Flame" with Dr. Sally Kydd. Amusing, motivating, reassuring, helpful and just plain fun.
A Sunday morning workshop: "Living with Metastatic Breast Cancer. Support that Works" with Dr. Tzeporah Cohen. Emotional,moving, cathartic, uniting, strengthening.
Speakers who resonated: Deborah Dubenofsky (Ontario Region Board Chair, Canadian Breast Cancer Foundation) and Carol Ann Cole.
My takeaway message (from Dr. Natasha Zajmalowski, Dr. Rob Rutledge, Dr. Roanne Segal and others)-
When it comes to breast cancer recurrence, it appears that insulin is the root of all evil. Lowering insulin levels improves the odds for a long and healthy life. How to do this:
1. Get at least thirty-five minutes of moderate exercise every day. Hooray! Something I'm already doing right!
2. Maintain a healthy body weight. This has provided the kick in the pants to re-commit to dropping 44lbs by my 44th birthday. Weighing too little isn't good either but that's never been my problem.
3. Eliminate or reduce alcohol and sugar. The insulin explanation is the first one I've understood and accepted re the link between these yummy things and cancer recurrence. To be truthful, not being an "all or nothing" kind of person, I don't see myself promising to never consume booze or sweets again. I can't even say that I haven't partaken since the conference, this being the season of Hallowe'en and pumpkin ale. I can say that I will make a greater effort to hold out for the good stuff and not give in to cravings.
I'm happy to say that although this message was consistent, the speakers seemed to be devoid of judgment. No one was blaming the victim or telling cancer patients that they brought the cancer on themselves.
I still feel that there are greater environmental and medical issues that need to be addressed. But there are just so few things we can control as cancer patients that I appreciate straightforward advice and simple things I can do to increase my odds of being around to see my children grow up.
Thank you so much to the staff (especially Jenn McNeill of the CBCN) and volunteers (especially Andrew, a volunteer from Humber college who helped with my books, kept me company and was enormously supportive during and after my book signing) at the Canadian Breast Cancer Network and the Canadian Breast Cancer Foundation for helping me to promote Not Done Yet, and especially for organizing an amazing conference.
Can we do it again next year, please?
Sunday, November 1, 2015
questions off the grid
Last week, I spent several days in a cabin on a very quiet island in Northern Ontario. It was bliss.

Friday, October 23, 2015
beautiful night
My face hurts from smiling and my heart is so full it could burst.
And the bookstore sold out the books.
Thursday, October 22, 2015
launching

I'm off to Toronto today to celebrate my book! If you're in town, come see me at the Toronto Women's Bookstore.
We'll have a little nosh, a little drink, I'll read from the book...I think it will be a nice evening.
Meanwhile, here's a link to a blog called "Incredible Women," where I am honoured to say that I am being featured today.
Wednesday, October 21, 2015
going away
Thursday, October 15, 2015
will you be there?
I have been washing my hands lots and lots so that this overdue celebration can happen.

Also, I have been getting lots of interesting comments and messages in answer to my post on internet community. It's not too late to jump into the discussion.
Thursday, October 8, 2015
"body, mind, spirit" a national conference for younger women affected by breast cancer
From the Canadian Breast Cancer Network:
Please circulate this to your network members, friends and family, we would love to see them there!
OTTAWA, Oct 1 /CNW/ - Today, October 1, is the start of Breast Cancer Awareness Month and the Canadian Breast Cancer Network and co-presenter Canadian Breast Cancer Foundation will recognize the month with a unique networking event for 400 young women with breast cancer.
The National Conference, called "Body, Mind, Spirit", will offer young women with breast cancer the opportunity to network with others who understand their situation, find out about the latest research directly from some of Canada's bright young researchers, and follow theme sessions on issues everyone with breast cancer is confronted with.
Young women will have the chance to be supported in all aspects of their cancer journey. Theme sessions for the body include healthy living and prevention; for the mind, sessions on chemo brain, self-advocacy, medical research and the latest about breast cancer; for the spirit will touch on everything from Yoga sessions to a chance for a guided walk in a specially constructed Labyrinth for spiritual centering.
Participants can look forward to frank discussion and to be able to question experts about babies after breast cancer, breast reconstruction, what to tell your children about breast cancer and when, and intimacy and sexuality after breast cancer.
A writing workshop and a creative art session will aid self-expression, and book signings and a breast-cancer related art show will give participants a chance to create art, meet authors and to view theme art by people from all over Canada affected by breast cancer. Poster presentations will cover all that is new from breast cancer resources to community support groups. Author and breast cancer husband Mark Silver will interest many with his experiences and encouragement. .
The conference will feature two gala evenings; a "Dinner and a Movie" night presented by Rethink Breast Cancer, a special glimpse of their upcoming BreastFest with Jonna's Body, Please Hold and an appearance by filmmaker and comedian, Jonna who will present her Girl Manifesto - an uproarious look at our kooky notions of body image, defying the Image Police and freeing your inner renegade. Movie night food at a picnic in the park will feature everyone's favorite treats.
The second Gala will feature an Arabian Night with belly dancing, hand kohl painting, a blaze of color, special décor and treats for everyone present, a banquet as only the Hilton Hotel can produce, and special guest Rock Star Bif Naked who will share her breast cancer journey with her story "Rock Your Cancer".
Canada's own beacon of hope Carole Ann Cole, originator of the Comfort Heart symbol worn by hundreds of thousands, will be one of the speakers at an upbeat closing ceremony.
"Body, Mind, Spirit" takes place in Toronto, October 29-31. No registrations will be available on site for this conference, which is expected to sell out to 400 participants. A special hotel conference rate of $129 per night at the downtown Toronto Hilton will only apply to a block of rooms being held until October 8.
Registration is now open through www.cbcn.ca
I attended the first conference organized by the CBCN in 2007. It was an amazing experience. I'll be attending again this November (I am the fortunate recipient of a scholarship). Will you join me?
Wednesday, September 23, 2015
housekeeping
You can now subscribe to this blog. Quite a few people have asked me about it and it actually just took a few minutes to set up. If you want to get my posts via email, look over at the right hand column on this page. Just under the "about me" section is a little box in which you can enter your email address. If you do that, you'll be notified every time I write a new post. If you go that route, let me know if it works for you.
I recently found out that Not Done Yet is available as an ebook from a few different sources.
Amazon Kindle
US
Canada
UK
Kobo
Nook
I also have a few copies in my attic, if you like old-fashioned paper. I bought them at the author's discount, which I'd be happy to pass along to you. I'll even sign your copy and write a personal message. The cost of a real honest-to-goodness paper book is $20.00, plus whatever it costs me to ship it to you. That's a break even deal for me but I'd like to see the last few copies get out into the world. Click on the image on the top, right hand side of this page to send me an email or leave me a message in the comments.
I'll be back next week!
Friday, August 28, 2015
in pictures









These are some illustrations for the post I wrote on August 10, about our trip out east. Thanks to my sister in law, B. for taking the horse photos. There is NO WAY I was letting go of the reigns long enough to point and shoot.
Tuesday, August 11, 2015
43 things (part three)
holiday random
Here are some of the things we did, as they pop into my head:
1. We spent our first night in the Hotel Universel in Rivière du Loup, Québec (our options were limited, as we were travelling with two dogs). When I had made the reservation, the guy on the phone had said to me that the only rooms available were "poolside." What this turned out to mean was that our room had sliding glass doors and a small balcony overlooking the world's most chlorinated indoor pool. The room reeked and the noise from the pool, during the hours it was open, was unbelievable. D. LOVED it. He renamed it "The Great Place" (it looks nothing like on the web site. And I love the marketing here. "Classic" means completely unrenovated since my childhood. With the same carpets.) and it may have been the higlight of his vacation (we stayed their again on the way back. This time we had direct access to the parking lot and a row of other families with dogs as neighbours. This was much better from the adults' perspectives).
2. We stayed with my spouse's brother and family in PEI. It was my kids' first visit to the Island. The two families blend very well together and we had gorgeous weather. We had such a good time.
3. We had dinner with an old friend of my spouse's (I had over-lapped with him in our small university town but we somehow had never met) and his lovely spouse and son. We ate in their beautiful yard in dowtown Charlottetown. The meal was as good as any I have ever had in a restaurant. It made me want to move there.
4. My sister-in-law and I went horse-back riding with the older kids. It was a forty-five minute ride over very easy trails but I was more than a little nervous, as I have only ridden a handful of times in my life (and the last time was more than twenty years ago). My horse was named "Lady" and she was nothing of the sort. I was warned by the staff that she liked to stop and eat on the side of the trails and that she was likely to "test me." If I let her get away with anything, it would be "game over." Very reassuring.
I reminded myself that I am a Mom. And I have dogs. I know how to set boundaries. It actually went pretty well. I was pretty proud of myself. She did break once into a trot and I don't think I was very dignified but I managed to hold on. (And then she stopped to pee. And that turned out to be the the day that we were without water overnight. Even after changing, I still had the smell up my nose. My older son made it worse. Every so often, he would come close to me, sniff loudly and say, "Horse." A comedian that one).
5. PEI beaches rank among the most beautiful places in the world. We went to this one (four of us - not me - were brave enough to jump from the dock into the river. I was happy to stay ocean-side) and this one (some of us thought there were too many jelly fish to swim but we went for a beautiful walk along the dunes) and this one (I took the dogs for a long walk along the beach here. I have run out of superlatives. It was purty.)
6. I turned 42 on August 4. I slept in. We went to the beach. We ate oysters and mussels and lobster. There was wine. There was cake. And the little kids spent the day saying, "Shh. It's a secret." One of my favourite birthdays ever.
7. One day, I had fried clams and french fries for lunch and dinner (or dinner and supper, as they say in the Maritimes). And that was pretty representative of our vacation eating habits.
8. I brought back ginger ale for Sassymonkey.
9. We visited with my father's oldest sister (he was one of 10 and my mother was one of 13) in Miramichi, NB. Her beautiful house holds so many memories for me. I am so glad we stopped, if only for a couple of hours.
10. We spent two nights in Dalhousie, New Brunswick, the town where I was born. It's also my mother's home town and it was so much fun to spend time with her family and see some of my relatives. We went for walks on the beach and played by the light house I visited as a child. The best part though, was sitting in my cousin's back yard and laughing until I cried. I had not seen these relatives in many years but I have become convinced that there is a sense of humour that is genetic (my sister and Mom know what I am talking about. And we also seem to share a love of animals. The dogs were a huge hit).
11. We drove and drove and drove.
12. Today, I am going to reacquaint myself with vegetables. Fries are not a veggie serving. Beer is not a grain. And drinking wine is not like eating grapes.
Sunday, August 2, 2015
Immune systems and all that.
But I usually just ignore my immune system and do what I feel like. Call me a rule breaker if you want.
When I was in chemo, they (the proverbial 'them') said I should avoid crowds and not to go to the mall, movie theaters etc. I didn't go to the mall or movie theaters. But I did work for the local community ed program in the office of a local high school. I am sure there are barely any germs in a high school. Just a few thousand teenagers. I wasn't concerned. I worked with a paranoid germaphobe and let her be concerned for me.
This week I took my immune system compromised body through two airports (twice - there and back again (as Bilbo would say)) and sat in meeting rooms with other immune systems. I was probably exposed to about 10,000 other people, give or take 5,000. And I even rode the subway to minimize exposure.
Now that I am home, I feel tired and my back hurts (that's nothing new there).
I might have a sore throat but I am sure that is just be allergies. I'll may get to the the gym later. In the meantime I am doing many loads of laundry.
Saturday, August 1, 2015
I dont travel well any more
Now, can we go off for a day of fun? Only if I get enough sleep first. A weekend away? Let me count out my pills to make sure I am prepared. Is there plenty to do if I need to lie down for a bit (so my husband isn't too bored). Are there wimpy activities if I need to change plans?
I am traveling, by myself, with my newest purchase, a four wheeled suitcase which is much easier on my back. I will be home tonight... I may implode first because I forgot my pills last night. Damn. Triple damn. That's only my anti inflammatories, folic acid, antacid, second lyrica pill, antidepressant, vitamins, and I can't remember what else that my body needs to function.
You say, why can't you take them this morning? Some are twice daily. Some make me fall asleep so I purposely take them at night. And I can't take anything else until its been an hour since I took my thyroid meds. So I am better to suck it up through my morning meetings and take an Ativan later for my flight home.
I can't believe I forgot them as I skipped a group outing to get some sleep. I went down to the hotel bar and had a glass of wine while they made my sandwich which I ate in my room so I could rest.
Finally I am contemplating some sort of revenge for the drunk neighbors who, came in at 1130 and were banging around next door for an hour or so. I need something loud to drop. Hmmm.... my inner evil twin comes out when I don't get enough sleep.
But I should be on my way home this afternoon to my husband, cat, and own bed, with my day by day pillbox on the bedside table. I can't wait.
Friday, July 31, 2015
free to a good home (part 2)
A few weeks ago, I wrote that I had an almost new prosthesis that I was seeking to re-home. This is what happened next:
Julia consulted other directors of Breast Cancer Action, who suggested that there might be a program to send prostheses to developing countries. She also called the social worker at the cancer centre who told her that Canadian Cancer Society takes donations (1745 Woodward Dr., Ottawa, ON K2C 0P9. 613-723-1744). I am so grateful to her for doing this.
Throws Like A Girl , who is part of our group at Mothers With Cancer, suggested that we need "a prosthesis relocation program."
Imstell jumped in with the following:
"Maybe we [Mothers With Cancer] could just host a bulletin board where people could post their needs:
FREE TO GOOD HOME Single 36C teardrop prosthesis. Likes to travel. You pay shipping.
WANTED swimming prosthesis. Any size large enough to hide my belly.
These had me laughing out loud but I think we might actually get something like this going.
Finally, Christine told me that she has a friend who lives locally, who was in need of a new prosthesis. It turned out to be a perfect fit.
Thanks to all who commented here, via email and on Facebook. You made me laugh. And you made me feel good about the power of community.
We are off to the maritimes tomorrow (if all goes well-it's a two-day drive with two kids and two dogs). I may be offline until August 12. I feel the withdrawal pangs starting already.
some further and disjointed thoughts on my blogher09 experience

A non-virtual connection with Melissa from Stirrup Queens (and author of "Navigating the Land of If"). We are both holding Nora's head on a stick.
1. If Twitter was played a role at last year's BlogHer conference, this year it was front and centre.
Many of us followed what was happening in other sessions we attended by following the keyword (called a hashtag with a #sign) blogher#09. These are my tweets from the session I attended about "Online Safety for Your Kids Who Are Online Themselves" (I had expressed in my previous post the concern that it would be all about scaremongering but was delighted to find that it was not):
"if you are an engaged parent you have less to worry about in terms of sexual predation online" #blogher09 session on online kids.
it never occurred to me to worry about kids taking pics at my son's sleepover b-day party. should i have? #blogher09 kids online session.
"every technology brings with it new fears." the take away - don't panic! i love it. panel on kids online #blogher09 do you post photos of your kids online? on facebook? flickr? #blogher09
"identifying information that your kids put online has NO correlation with sexual predation." #blogher09
"reputation management" never heard this before in online context. interesting. #blogher09. your photos and words may come back on you, kids
"we are tethering our kids" "we are raising our kids in captivity" - this is the way times have changed. #blogher09.
2. In the closing keynote, the subject came around again, to Twitter. One commenter likened her Twitter community to a support group "I think the women I've met online in the pregnancy loss community have saved my life" (I didn't get her name or blog. Let me know if you did). A powerful statement, but I can relate. She went on to say that support groups are not available 24/7 the way that an online community can be.
3. One of the speakers also observed that most people get started blogging because of someone they know in their "physical life." I thought that was interesting, because it was my spouse (a non-blogger) who introduced me to the blogosphere.
4. Another favourite keynote comment (again, if you know who said this, do let me know): "People with higher levels of income tend to be online. We need to be vigilant that our online communities are not recreating or reinforcing existing inequities."
5. As you can see, I found the content to be very rich and thought provoking this year, despite the size of the conference.
6. I do worry that some people spent so much time tweeting that they missed connections with real people or taking in the discussions occurring around them.
7. One of my favourite Twitter moments occurred when "phdinparenting" lamented her dislike for American beer. She posted about our interaction on BlogHer. It really tickled me that I could be of help. There were lots of those kinds of tweets, throughout the conference.
8. I wish the bookstore had been in a different location. One person suggested in a conference feedback thread that the bookstore would do better closer to registration. I suggested that book signings take place during cocktail parties, in the middle of the action (and of course it wouldn't hurt if free cocktails made people want to buy more books). The conference organizers have acknowledged that the placement of the bookstore in the far corner of the Expo hall was a mistake (too far out of the way. And who wants to buy a book when they are surrounded by mounds of free stuff?). While I do understand how experiments can fail (and how it must have seemed like a good idea during planning) I just wish that this particular year (when I schlepped a bunch of books in my suitcase) had not been the one where the bookstore flopped.
9. Elisa from BlogHer made an observation (in a tweet, of course), that she is trying to learn the distinction between things that are "wrong" and things that are just not her "cuppa tea." That's how I feel about the karaoke during the Friday night cocktail party. I hated it. However, others seemed to be having fun (perhaps I am just getting old), so I got myself a hot date and went to find a patio.

10. I have other thoughts but Sassymonkey and Blondie expressed them already. Go read their posts.
I said many times before going that BlogHer09 would be my last. I hadn't even unpacked my suitcase before I'd begun to fantasize about getting to BlogHer10 in NYC. Anyone want to drive down from Ottawa and share a hotel room with me?