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Showing posts with label confusion. Show all posts
Showing posts with label confusion. Show all posts

Tuesday, January 20, 2015

My story is that I have chemo brain, fibro fog and something else I don't remember....

Now I might be able to also claim Tamoxifen fog. I was on tamoxifen for two years so now I have something else. But I think there is still something else. I just can't remember.

I am confused

I admit to being confused. I have rheumatoid arthritis. I am on injected methotrexate. Am I supposed to be feeling better? Because I am not. I keep forgetting to ask my rheumatologist about this.

I know I have other pain causing ailments - degenerating disks in my back cause pain in my lower back. I know all about these pains. If I bend over to pick things up, my back reminds me I should not - never mind that you are supposed to squat and lift with your knees. But that is one set of pains.

Then I have the fibromyalgia induced pains. Those are the ones which are not back pains or rheumatoid pains. They appear as things like bone deep pain in my arms or elecgtrical pains across my lower back.

And I have osteoarthritis pains. That is when my  knees crunch when I bend them. I have Snap, Crackle, and Pop and their extended family reunion living in my left knee. And my right knee and a few other assorted places.

But I know I have RA pain in places that never really feel better. This includes my hands where my knuckles always feel inflamed and swollen. My wrists, my shoulders, my ankles, and my feet. And other places that are symmetrical. RA pains are easier to pin point as they are symmetrical. I am on medication and anti-inflammatories but they are always there.

If I judge my health based on the television commercials where people are moving about freely while they are on medication for their RA. I clearly not atfor a commercial any time soon.

But my real question is am I supposed to not have pain from my RA? Or is the treatment not working or am I living in a constant flare? And combined with fibro fog and fatigue, I am a walking disaster.

I think I need to write myself some notes and bring them with me to my next rheumatologist visit in January. Crap. That's a long time from now.

Tuesday, January 6, 2015

About that risk assessment

There is all this talk these days about what you can do to reduce your risk of cancer, dementia, chicken pox, or the common cold, among a million other things. You know all the advice - eat broccoli, exercise, don't drink, lose weight, exercise, eat margarine no eat butter, drink red wine no white - and all it does is confuse the crap out of us.

Then they start to give people personal risk assessment for an ailment and expect us to believe them. How much conflicting medical advice do you hear on a given day? A lot. Eat red meat and chocolate, no don't, yes, well a little, and the famous words - in moderation. How can you be expected to believe anything?

When you are told what your risk of some thing is - whether being diagnosed with cancer or being hit by lightening, don't you always harbor that little thought in the corner of  your brain that of course they are only talking about other people and not you or anyone you care about. Its always going to affect those other faceless people you don't know.

So why all the surprise when a new study shows that one in five women don't believe their breast cancer risk? I can honestly tell you I was very surprised by both my cancer diagnoses. I thought my back pain was the result of muscle strain and not the permanent debilitating state of the disks in my spine. I thought my aches and pains that turned out to be rheumatoid and fibromyalgia were just normal aging.

Sometimes I think, they were all wrong and I am really a healthy person who can live the way I used to - working full time, having a social life, and going off on adventures regularly that involve beaches, mountains, and the great outdoors.

Seriously, we hear so much conflicting medical advice and then if someone gives us a risk assessment, we are supposed to believe them? I think a risk assessment is like listening to the weather forecast - there is a good chance Saturday will be rainy and it should clear out for Sunday but watch out for a hurricane next week. How do they really know?