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Showing posts with label #Community. Show all posts
Showing posts with label #Community. Show all posts

Wednesday, July 1, 2015

Let's Talk: #BCSM - Breast Cancer Social Media

I can honestly say that social media changed my life.
          If that seems overarching let me just tell you a quick story.
          When the economy tanked in '09, so did my supply of free-lance projects.  As I was looking around for additional work, I kept reading about these great unknowns. One was Twitter.  The other was something called "social media."
          Immediately I felt intimidated, as though it was something for cool people to do with other cool people.  I've never been a cool person.  And I was already in my 50's (potentially very uncool even though I'm fond of it). I knew that if I didn't go catch the bus and go to school on both I was going to have a long walk home.
          Here we are today, Friday, July 1, and the introduction of #BCSM, Breast Cancer Social Media, a Twitter chat starting Monday, July 4 at 9 p.m., eastern/8 p.m., central.  Initially Alicia Staley (@stales) and I will moderate, but a conversation doesn't not "belong" to either one of us.
          It's ours.
          And our example comes from watching and participating in three different Twitter chats, the original #HCSM moderated by the incomparable @danamlewis, #hcsmca moderated by the also incomparable @colleen_young, and #HPM, yet another fantastic discussion on hospice/palliative medicine started by @ctsinclair.
          So we'll blend their example with the breast cancer community's needs.
         
It's our premise that the breast cancer community needs to redefine pink.  That's a premise. The purpose of the chat is to find out what YOU think, from prevention, to treatment, and defining what life is for you now, today, as a woman with breast cancer. There's so much to talk about in fact that we'll never be at a loss for things to say. Far from it.

The challenge will be in saying all that's essential in each weekly, 60-minute chat. We hope that by starting up the conversation we can truly change the tide.

            So please join us Monday nights, beginning at 9 pm ET/8 pm CT for #BCSM on Twitter.  All you have to do is type in #bcsm in your search feature and anything related to this hashtag will appear.
            The only "rules" in regard to a tweetchat are to refrain from shameless self promotion and focus, instead on exchanging the best of what we know to help each other. That's what we do every day anyway.  Now we'll do so in one place, at one time.
             I can't wait!           

Sunday, March 22, 2015

Fearless Friends

Last Sunday the Discovery Channel launched a seven-part series, "The Frozen Planet," an epic documentary of the earth's polar regions and the very real threat posed by global warming.
         
I could spend the rest of my life watching television like this, or studying animals in general and dolphins in particular.

Dolphins stay in small units, or pods, and communicate via an elaborate system of whistles, clicks, and squeaks.  We all know about the squeaks from Flipper and bad Disney films. But their group behavior is something that can constantly teach us.

Instead of casting a weaker or ill member aside, as many other animals do, a pod of dolphins will often surround an ill dolphin and work as a team to bring her up to the surface for air to prevent her from drowning.  In other cases, bottlenose dolphins have been seen biting and pulling through nets to save a captured companion or staying close to a female dolphin in labor.

While these "empathy-based" behaviors are difficult not to anthropomorphize, I'm sure that's exactly what led a friend to leave us with a beautiful figurine of a dolphin leaping from the ocean's surface when she and her husband moved from our community to Florida several years ago. The dolphin was her gift to us.

The tightly knit pod, she said, reminded her of the breast cancer support group where we all met. And that when one of our members - first Theresa, then Judy - sickened and ultimately died - we all pulled together, and brought our ill friends to the surface for air, so they might breathe easier, if only for a moment. We stayed with them, by them, around them, until there was nothing else we could do. Then water, life-giving and always mysterious, flowed in to fill the space.

In Loving Memory --
Judy Halinan, Denell Hilgendorf, Elizabeth McCready, Rachel Cheetham Moro, Susan Niebur, Monica Phillips, Anne Robinson, Theresa Walleye.

The term "Fearless Friends," was coined by Rachel Cheetham Moro in a tweet chat on January 23, 2010.  She died on February 6, 2012.  We will always miss her.